Felix is 10 months old today. He is so happy these days, and is a delight to spend our days with.
We are doing better with routines now, and I think that has helped him understand when bedtime is. Sleeping remains a struggle, and naps are nearly nonexistent, but we’re going to continue to work on it.
The developmental specialist said we should try to re-introduce dairy into Felix‘s diet, and so far it’s going well in small quantities. He is eating a pretty wide variety of foods now, and is finally starting to try and feed himself.
He is not crawling yet, though he is getting closer every day. His physical therapist reduced his visits to every other week rather than every week because he’s making such wonderful progress. She said she anticipates him being caught up with his peers by age 2. We are just all so happy that he is getting caught up, and that he has passed his fussy first several months.
I can’t believe we are nearing one year old! Onward and upward!
Felix had his follow-up with his developmental specialist last week. All genetic tests came back normal. Imaging and other tests were normal except reflux, which we already knew. Great and consistent progress and improvement during physical therapy. So Dr. Noble said unless we wanted to chase any genetic anomalies, he wouldn’t see him back for another 6 months. Which we chose not to do since he seemed very optimistic and not at all worried any longer.
Things Felix has left to do in November:
• GI Specialist
• Neurologist and EEG
• Continued physical therapy
No new specialists beyond November at this point. We may have follow-ups, and of course continued physical therapy, but nothing more referred by Dr. Noble. We’re making progress!
Felix is 8 months old today! In the last month he has really blossomed. Whatever funk he was in for the first 6 months of his life has definitely passed.
Things he does now:
• Looks at faces, makes eye contact, smiles, and has stranger anxiety.
• Rolls front to back, back to front.
• Reaches up and out with his hands to grabs objects.
• Sits for a few moments at a time, with improvement every day.
• Stays on hands and knees for a few moments with help.
• Squeals, babbles, and razzes all the time.
• Enjoys bath time (and swimming at the Y).
• Likes playing games and singing, like “Pat-A-Cake” and “Itsy Bitsy Spider.”
• Actively and happily participates in physical therapy at appointments and at home.
• Drinks breastmilk on demand, and eats puréed baby food twice a day.
• Sleeps in his crib (no longer his bassinet) for longer stretches of time at night. But still doesn’t nap well.
• Still prefers the outdoors.
I’m sure there are a few things I’m missing. But these are all big changes that came all at once. He also got his 6 month shots today since he was on a delayed schedule due to his previous CMV infection. At his appointment he weighed 18 lbs 1 oz, and was 27 inches tall.
Now if I could just get him to smile for a picture, it would be really helpful for these monthly updates. Haha!
I just wanted to follow up my previous posts with some updates. First of all, it turns out we were fully insured. Insurance deemed the car a total loss and paid us out. We were able to find a minivan at a reasonable price and are getting some repairs done Friday to make it last us a while. Felix continues to do amazing at physical therapy except for the last couple days, when he just wants to be held all the time. I’m sure a big part of that is the fact that he’s teething. He’s gotten one tooth and the second one isn’t far behind.But anyway, Felix can roll front to back and back to front now, and when he does the exercise when he’s on his tummy on his boppy, he’s getting strong enough to push himself off and over it. He’s also really been studying faces lately. I’m so proud of his progress.
Andy got his braces off today! He had them for 3.5-4 years, with a jaw surgery during that time. He said it feels weird and a little sore. But he’s happy.
Evan had court today to review his court ordered outpatient committal. The judge dismissed the case, saying Evan was no longer a threat to himself or others. But he’s gotten 2 criminal charges and has violated his probation (recently). I told him the ruling may seem like a good thing, but what it really means is that now when he decides to act a fool, he can’t hide behind mental health. He will just be treated like a criminal. He faces a judge about his second criminal charge soon.
Jarrod had a really good time at Riot Fest despite his shitty adventure on the way home. He got to see a couple bands in particular he was very excited to see: Guided By Voices and Ween. I’m glad he was able to go and enjoy himself, even if I was unable to join him. Hopefully I get so fortunate as to be able to go to a concert soon.
I finally saw a doctor about a few things I had been avoiding and/or putting off. Nothing too serious. I’m not going to go into any of that right now because Felix is starting to wake up from his mini nap and I don’t have time to type about it. I’ll update again soon.
Since my last update Felix has had 4 more appointments: a sedated MRI, a feeding/speech evaluation, and intakes for physical therapy and occupational therapy.
The MRI was on September 5th. Jarrod and I both went with Felix that day, and we were scheduled to arrive at 8:30 AM. Felix was to be without food or milk for 4+ hours at the time of his test, which was scheduled to begin at 10:00 AM. We arrived on time, got checked in, and things went very smoothly.
Once Felix was taken back to the nurses, things went pretty quick. He got examined, prepped and an IV started, just in time for the MRI to be ready. Just before they took him back, they injected the sedation med. it was weird and unsettling to see him go from active, happy baby to asleep in mere moments. But I knew he was in good hands. The test took about an hour, and when they brought him back in he was just barely starting to wake up. Jarrod and I were there talking to him as he regained consciousness. Within about 30-45 minutes he was back to being happy (once he was able to have some mommy milk). We were told it would be a couple days before we got his results, but before the business day was over we got the phone call. Everything looked normal! Big sigh of relief!
For Felix’s feeding/speech evaluation, I took him and Evan came along. Jarrod was working. I took Felix in hungry, knowing they would want to see him eat. She sat him in a high chair and used the puréed food I brought to feed him on a spoon. He was very attentive, happy, and eager to eat. He leaned forward with his mouth open for bites, and ate very well. The therapist listened to his swallowing sounds, watched his mouth movements and body language, and told me that his feeding skills are right on track with his gross motor skills. She had no concerns, and did not recommend continued therapy at this time.
For Felix’s physical and occupational therapy appointments I took him alone. I am very thorough on keeping Jarrod, who is an amazing provider, in the loop with all the details of the appointments. For his physical therapy, the therapist evaluated Felix and said his Hypotonia is mild, and really Felix’s muscle tone is on the low end of average. He said it takes more work than the average person for Felix to move his body, but physical therapy will certainly help. He wants to see him weekly for now, with exercises to do 4-5x per day at home.
For his occupational therapy, the therapist played with him a little and said anything she wanted to do for Felix at this point would overlap with physical therapy. Since insurance won’t cover anything overlapping in 2 therapies, she said she didn’t have a reason to continue therapy at this time. However she’s leaving it open-ended and “as needed” just in case he needs help with small motor skills in the future, which hopefully he won’t.
It’s only been 2 days since we started doing the physical therapy exercises at home, and already Felix is showing signs of improvement. He’s using his arms a lot more already.
Beyond the tests and therapy, Felix also has really become a lot more aware of the world, interactive, social, and communicative. I don’t know exactly what has changed for him, but Jarrod and I are both extremely thankful for it. He’s so much more happy and fun, and it’s amazing to watch him thrive and grow. We have a much more positive outlook for our little guy now.
Still to come: an EEG and neurology consultation, GI consultation, blood/genetic test results, ear exam and eye exam. It’s a wait to get in with all the specialists so it will be a couple more months for GI and neurology.
A blog about my life as a devoted wife and mother…